And the results?? POSITIVE FVL. Even though I had a feeling of a positive result, it still is incredibly upsetting and scary. Factor V Leiden is a blood clotting disorder that is genetic, yet no-one in my family has been diagnosed with it before me. My biggest concern now is my day to day life. I have so many unanswered question and have to go see a primary doctor about everything. Most people are put on blood thinners for this. That's terrifying to me. I have to learn about the warning signs that I may have a blood clot and be able to get to a doctor right away if I suspect I do.
I had joined a Pre-Eclampsia survivors group on FB and asked there if anyone had been diagnosed with FVL and went on to have a healthy baby. One woman said she had FVL hetero (like me) and MTHR homo (which I'm still trying to figure out), and did have a healthy baby. Unfortunately because of the health risks involved, she couldn't enjoying her pregnancy. It was terrify that at any moment something could go wrong. She had to see her regular OB and a high risk OB every other week for the first 6 months, and then had bi-weekly appointments.
Joel and I aren't ready to make any decision about growing our family just yet, but for me, doing research prepares me for when we will be there. I have to be fully informed about the risks to our potential children as well as to me. I cannot put myself at risk and leave Joel without his family which very well could have happened (I read my c-section report, but that's for another day)!
For now, we have to just try to survive the holidays, and wait for my next appointment to learn more.
I had joined a Pre-Eclampsia survivors group on FB and asked there if anyone had been diagnosed with FVL and went on to have a healthy baby. One woman said she had FVL hetero (like me) and MTHR homo (which I'm still trying to figure out), and did have a healthy baby. Unfortunately because of the health risks involved, she couldn't enjoying her pregnancy. It was terrify that at any moment something could go wrong. She had to see her regular OB and a high risk OB every other week for the first 6 months, and then had bi-weekly appointments.
Joel and I aren't ready to make any decision about growing our family just yet, but for me, doing research prepares me for when we will be there. I have to be fully informed about the risks to our potential children as well as to me. I cannot put myself at risk and leave Joel without his family which very well could have happened (I read my c-section report, but that's for another day)!
For now, we have to just try to survive the holidays, and wait for my next appointment to learn more.
I know this is so very hard for you, Joel and all of your family. You are a brave girl and the time will come when you will make the right decision. Love you so much, Aunt Nancy
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