Sunday, August 20, 2017

The Path I Never Wanted

The past week has been full of anxiety, stress, and sadness. We knew this was our last shot to get pregnant before we were going to need to go through IVF. After a year of trying, countless doctors appointments, (almost) every fertility test that could be done on both Joel and I, and lots of pills, we were clinging to hope that this final IUI would work. This 4th IUI testing was the most positive results we had ever had. I somehow had grown 3 follicles (usually it’s only 1). Joel’s numbers were the highest we’d seen. My blood work also showed incredible results. There was no way we weren’t getting pregnant. Right?! Something good had to finally happen to us. Haven’t we been through enough?



Nope.

Negative.

Again.

To say we have been devastated is an understatement. I haven’t felt this low in a long time. I feel like a failure. I never expected us to struggle to get pregnant with how easily we got pregnant with Ellie. How could I be so naive after everything we had already been though.

On the recommendation from our RE (reproductive endocrinologist), we will have our IVF consultation in October. They gave us all the paperwork last month just to look it over- in case we needed it- but I didn’t look too much into it. Every ounce of me truly believed this would be our month- so why read it?! This week I finally went through it, called my insurance company, attempted to find a way to pay for it. But when an elective procedure costs $15,000 and insurance companies don’t care if you want to have a living child, it’s kind of impossible (for us) to do. Since starting to try for our second child, we bought a house and started a major renovation. Not to mention, all my student loans have gone up in interest rates. So to pile another bill on top of all these things is just not going to happen. Trying to come to terms with the fact that it will be a couple years before we can go through IVF is not easy. And as much as I hope I could get pregnant while we are saving for IVF, I'm not holding my breath. Yeah- it could happen. But why would it if it hasn't in the last 12 months with all the medication and doctors and constant monitoring.

And because I know that talking about child loss and infertility is not something that most want to hear about so they just tell you other ways to have a child, please read this article.

Losing a child and now going through infertility has turned me into someone I no longer recognize. It has made me so bitter. I cannot look at a pregnant woman without being angry and jealous that she has everything I want. I don't like feeling this way, but I can't help it. When I see people from my old life, the naive and innocent life that is long gone, experiencing pregnancy and acting as if nothing bad will happen to them, makes me feel like they believe this is all my fault. That their baby won't die because they are doing everything right and my baby died because I didn't. That I screwed up. And maybe had I known someone before Ellie's death that had experienced child loss I would be the same. That it's something that happens to other people- not me. That nothing bad could ever happen to my child. Yet here I am, watching people get pregnant so easily and buying everything they may need so early on, not even thinking about what could happen. That they could potentially be in our shoes one day.



Wednesday, May 17, 2017

Infertility

     I have been extremely hesitant to talk about our journey to give Eloise a sibling publicly. In the first few months, while I was still in shock, I assumed we would eventually have another baby and it would be as easy as it was to get pregnant with Ellie. Because I had a c-section, I was told to wait 12-18 months to start trying again. This would allow my body enough time to heal and hopefully have a vbac.



     In August 2016 we decided we were as ready as we could ever be emotionally to start trying again. Making that decision was so difficult for me. I was (and honestly still am) afraid that if we have another baby, Eloise will be forgotten about. The thought of that happening is truly heartbreaking. I love her so much, and I need her to remain a major part of our lives. On some level, not having any more kids felt right just so I could keep this grief front and center in our lives and remind people of Ellie.


     After Ellie died, I can't tell you how many people told me "you're young and healthy, you'll have more kids!" It pissed me off back then, and it's even more hurtful now. First, to say that to someone who has lost a child, makes them feel as if they NEED to have another child. They don't. That is a personal decision they can make on their own. Second, that's incredibly disrespectful of the baby that died. It makes the fear of the child being forgotten even more apparent. Third, you don't know that someone is healthy. You don't know what is going on in their body. You don't know if they have struggled with infertility. Making thoughtless comments such as this to make YOURSELF feel more comfortable when talking to a loss parent makes them not want to be friends with you any more.

     After a few months of trying, and noticing my cycles getting longer and longer, I decided to call a fertility doctor just to get their opinion. I was so sure that because we got pregnant with Ellie so easily, we would be able to get pregnant again right away. Nope. Meeting with the first fertility doctor was nerve wracking. I was recommended to go to someone else, but because I have little patience, I made an appointment with the first available doctor. So after work one December night, we drove to Solon to meet him. I went over our history and talked about Eloise a little. He handed me a Rx for Clomid and said see you in 6 months if it doesn't work. To say I was pissed at that response was an understatement. I cannot stand doctors who just throw out a Rx without looking at what could be causing the problem to begin with. So to have someone do that in our fertility journey infuriated me. I filled the prescription and waiting for the 3rd day of my cycle to start it. It never did. After multiple negative pregnancy tests, I called the fertility doctor and he gave me another prescription to help start my cycle. Finally, after 73 days without a period, I could start the medication. After that I made the first available appointment with one of the recommended fertility doctors.

     We met with the new fertility Dr. (Austin) in February and both Joel and I immediately felt a sense of relief. She wanted (without me saying anything) to do blood work and see what could be causing us to not conceive. They found that my TSH (thyroid) was elevated, but still technically within "standard range." For pregnancy, it's recommended to have it on the lower end of that range, though. So I was prescribed a medication for that. They also saw that my body just wasn't even producing eggs, so my clomid was increased. I also have to do a "trigger shot" to help me ovulate. A trigger shot is an injection of hCG that helps release an egg from your ovary. I have to give this to myself (Joel refused- he didn't want to hurt me) on a specific day in my cycle at just the right time. To know when I need to give myself this shot, I have to go get follicle scans usually twice a month. A follicle scan is an internal ultrasound and it looks at your ovaries to see if any follicles (which hold eggs) are growing. Once they grow to a certain size, I have to give myself that shot in my stomach, so my body releases the egg. We also learned I have a pretty severe Vitamin D deficiency (Thanks, Ohio!). This low Vit. D can cause problems with fertility as well. So on a supplement I go.

 
( I know, fantastic outfit 😉)


     On top of all this, I started seeing an acupuncturist. So many loss mamas told me thy started seeing one and it helped a lot. So Joel and I figured, why not. It could only help. So every Wednesday after work, I go to group acupuncture. It's not my favorite, but it's "cheaper" than private sessions. I also started yoga (again from recommendations of other loss moms). They both give me some time to relax, which is something I desperately needed. I'm a high stress person to begin with, but going through all this definitely made it worse.

     After a couple cycles with no positive pregnancy test, we decided to have Joel go though some tests. To be considered "infertile," you normally have to be trying unsuccessfully for about a year. After getting Joel's test results back and after 8 months of trying, we got that label slapped on our medical records. Between me not ovulating, and Joel's morphology being so low, they told us we should start trying IUI (the step before IVF). That's scary. I knew if we got to IUI it would be expensive and that there was no guarantee it would work. Every month could be "wasted" money. Every IUI treatment is $500, and if we have to go though IVF it's over $12k. How are you supposed to go thought IUI and also save for IVF as a backup?! It's hard to stay hopeful and positive when the last 19 months of your life have been hell.

     In April we had our first IUI procedure. I didn't know what to expect from it. I wanted it to work so badly. When I went for my follicle scans they saw a few small ones, and 1 large one. Better than none, but I could hear the disappointment in their voices. Based on how the follicle was growing, I had to trigger on a Friday night, and then on Sunday morning we had to go in for the procedure. Joel had a bachelor party the night before, but we couldn't change the appointment. You go based on where your body is in a cycle. You drop your plans and you make it work. We had to wait 2 weeks to find out if it worked. Do you know how long 2 weeks is when you're waiting on something like this?! Because I'm a very impatient person, I decided to test 2 days early. Negative. A couple hours later, negative. That night, period. I was heart broken. We spent all that money (IUI isn't covered by insurance) and didn't get anything out of it. Another month of having the little bit of hope I could muster, destroyed.



     Because of the timing of everything, we won't be able to do IUI this month. We have a VERY NEEDED vacation planned during the time we should be doing IUI. IF (and thats a big IF) my body can get itself together and grow those little follicles faster, we may get to do it right before we leave. If not, I'll have to take the trigger with me on vacation. That means keeping my fertility diet going... on vacation. No alcohol, no coffee, and lots of healthy foods, and tons of supplements. But, because we want to give Eloise a sibling, we do what we have to.

     This whole process (both loss and infertility) has made me pretty bitter. I hate seeing pregnant women. I hate seeing the people who I once considered my friends, the people who abandoned us, pregnant and most likely bringing home a healthy child. It pisses me off that so many unfit people get to be parents to living children. The only people I actually want to be around any more are other loss moms. Going out and socializing has become a fear. Fear of people asking "do you have any kids?" and them talking about theirs. I hate going on Facebook and what seems like every other day is a pregnancy or birth announcement.
It's frustrating. It's heartbreaking. It's hell...

Wednesday, January 18, 2017

6 Months Later...

     So it's been about 6 months since I last posted. It was wedding season and the more I worked, the more I was able to feel in control- something I haven't felt since Eloise died. A lot has happened in those 6 months. We celebrated Eloise's 1st birthday, had to experience our second holiday season without her, and bought our house. To say it was difficult is a huge understatement. I feel as if I have been in a fog since October because of these things.

     To celebrate Ellie's birthday we decided to do family photos. Family photos are something we typically do around our anniversary in July, but in 2015 that changed. We planned on using our maternity photos as our family photos that year, but Eloise died a week before our appointment. This year it only felt right to do them on her actual birthday. The day before her birthday I felt horrible. My grief was becoming overwhelming, and felt like the early days of this journey. How was I supposed to celebrate my daughters first birthday without her even here. That's not how this is supposed to be. The party my mom had for her didn't even feel like her birthday party. I think I only had one conversation about Eloise. AT HER OWN PARTY. It was heartbreaking. The night was supposed to be about her. Not people getting drunk. Just because the child isn't physically present doesn't mean you don't treat the event like any other child's party. After all the terrible emotions of a terrible night I wasn't the most optimistic for her special day. Fortunately I didn't have to do much to get ready. I made an appointment to get my hair and makeup done because I just knew I would be a mess and wouldn't be able to get myself together. When we got to the park for photos I actually felt the best I had all week. Something about doing this special activity for Eloise. It was all about her. And luckily the photographer (Jackie @ Brittany Gidley Photography) is also a NICU nurse and has experience with family of child loss (Our biggest reason for choosing them!). And she was amazing. We love meeting people, or talking to people in general, who aren't afraid to speak Ellie's name and can have a conversation about her as if she were physically there with us. It was perfect. And our photos- stunning!





     The next challenge was the holiday season. I learned this year that I'm pretty much useless from October- January because of my grief. Again, last year I was still in a fog so this was new. I think the hardest part of the holidays was the fact that everyone had moved on. They didn't seem to understand how difficult it was for not only me, but Joel as well. As if we were expected to fall back into the normal holiday routine. We wish we could have skipped the holiday's all together. I think Joel and I have decided that this next year we actually will avoid them. Not matter what people say. Our mental health is so much more important. And I learned I need to speak up for myself more in those situations. Something that is very difficult for me, as I am a people pleaser.
The tree we helped decorate at the Toboggan Chalet

What grief looks like.

Daddy and Ellie Bear in Ellie's Room <3

My holiday grief coping mechanism. An ornament for all the babies who's mom's I follow on Instagram.


     We also bought a house- the one we have been living in the last 2 years. The home that FOUR generations of my family have lived in (Grandparents, Dad, Me, Eloise). The only home Eloise has ever known (my biggest motivation for buying it). While most people would be excited for this next step (and I am, don't get me wrong) it's also sad that I don't get to watch Eloise play in it. Her room has sat fully decorated for over a year now, and should have changed as she changes. But instead it is still ready for a newborn that will never sleep in there. We should be making family memories in that home with her. We should get to teach her to ride a bike in the driveway, play in the snow with her puppies, roast marshmallows over a fire. These little moments that I long to have in our first home with our child.

View from our backyard <3


     While I had hoped 2017 would be better for us than the last 15 months have been, the year has already started off rocky with health issues, medication, and stress. I hope people will understand that we are still experiencing a life of loss. Of longing for our 15 month old who should be here with us. We may seem to be better on the surface when we are out, but the crashing waves of grief are fierce and will show every now and then. We need people to be gentle with us still. It's not fair to treat us as though we should have moved on. Our lives will be forever incomplete with Eloise.

     Until next time...